That was the topic of pillow talk tonight .. Bruce is worn down by all of the craziness of our life.. I guess I have become numb to it all.. He had told me tonight he wished for normalcy .. he wanted a break from behaviors ,feeding tubes and all the heaviness our life holds.. Not to be mistaken for not wanting to be here .. he just wishes he could make it easier for everyone.. I see him going inside his shell..
My response to him is this is our normal now and we have to sneak moments in for "us " in between the times we are dealing with things . I don't know what to do to get through to him .. and I don't know how to help him.
We met with Zach's therapist tonight .. all went fairly well .. we will be restarting therapy again.
Tonight I feel sad and helpless.......
No comments:
Post a Comment