One year later

Well we have hit the one year mark of Liza going into the hospital .. she is doing really well now.. Still not talking much and not eating by mouth much ...On saturday we took the kids sledding .. she loved it she laid in the snow and laughed . I think she might have over done it she seems alittle congested now while she is much stronger she still is fragile,.

We seem to be getting to the bottom of Zach's stuff ... Aspergers Syndrome seems to be what we are dealing with.I had wondered some time back if he Autism or something like Autistic Spectrum.It makes sense now - poor kid goes through alot .. he hallucinates and he will tell us things we know that never happened but he will swear it did.He has voices in his head that try to get him in trouble.. Hopefully we will be able to get him enough support and intervention to help him deal ..
The one thing that wears on with all of this is peoples response.There is the ones who we need to help with coping skills who question us make us feel like we haven't done something right or they know better on how to handle things.Then there is the ones who down play what we have going on and laugh things off.
The truth be said while this is the life we want and would never change it . There are days our life is heavy -with the running to apointments or dealing with meltdowns or just trying to have normalcy. It is a path chosen for us - I don't always know or understand all things in it.There are days I feel like I live in a land where many don't speak my language.Every move we make has be thought through to make sure how it will effect the rest of our world.