The other day a well intended person said wow wouldn't believe your kids had anything wrong ... they look so normal...The comment wasn't meant in a harmful way... but my thought was just what does normal look like .. If all of us took a look at ourselves there is probably something about us someone might not find normal.It was makes us individuals..
At timese it gets old to have to explain what is wrong with them and why we do what we do and the how comes of our world... While at times things are stressful and we sometimes wish we had a social life and didn't have to deal with what we have going on... We still have many great "normal" moments .. they are still both kids ... kids who like to laugh and play-- they like pizza /movie night .. camp fires and smores ..
We play games and all the other things families do ... we just at times have to break things down into smaller steps ....
We got Liza lined up to see Dr's at the U of M hopefully when that is done we will have a better hold of what is wrong --what she needs and the types of services to look for.It's funny in the beginning we are told we will need to advocate for our special needs adopted children.But one doesn't realize just how complexed that truly is ... Not every Dr sees you as a caring parent ... not every teacher /therapist ...( the list goes on) will listen to you..You will have to jump hoops ... stomp your feet ... grit your teeth at times --- swallow your pride at times ... to get things done.
I remember in the begining being warned by other parents about how much of a struggle it can be ... but also told it was well worth it in the end.
Sometimes our celebrations are just a bit different then other families ...
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